Welcome to our website. Whether you are personally affected by the syndrome, know somebody affected, or are a professional looking to find out more about 22q Deletion Syndrome, we hope that you can find all the information you need on this site.
Our support is lifelong: we provide resources for 22q, for life - our membership includes many adults with 22q. Many of them are themselves parents of children with and without 22q. We're not just here to support 22q children.
Our motto is "22Q CAN-DO". We're about helping everyone affected by 22q to help themselves, and gain independence. We're here to enthuse about the future, not to depress!
The 22Crew is the only registered charity supporting 22q DS in the UK run exclusively by parents of children with the syndrome. We are thus completely motivated to ensure our members interests come first.
We are a charity registered in the United Kingdom with the Charity Commission, Her Majesty's Revenue and Customs, and the Fundraising Standards Board. We operate with a lean expenditure and use today's technologies to reach a worldwide audience.
If you have any feedback about the content and usability of this site, please send comments via our "contact us" page.
UK Registered Charity No.1146975
The 22Crew: Home Page