Want to be our next featured 22Crew member? Contact Us!

Welcome to our website.  Whether you are personally affected by the syndrome, know somebody affected, or are a professional looking to find out more about 22q Deletion Syndrome, we hope that you can find all the information you need on this site.

Our support is lifelong: we provide resources for 22q, for life - our membership includes many adults with 22q. Many of them are themselves parents of children with and without 22q. We're not just here to support 22q children.

Our motto is "22Q CAN-DO". We're about helping everyone affected by 22q to help themselves, and gain independence. We're here to enthuse about the future, not to depress!

The 22Crew is the only registered charity supporting 22q DS in the UK run exclusively by parents of children with the syndrome. We are thus completely motivated to ensure our members interests come first.

We are a charity registered in the United Kingdom with the Charity Commission, Her Majesty's Revenue and Customs, and the Fundraising Standards Board. We operate with a lean expenditure and use today's technologies to reach a worldwide audience.

If you have any feedback about the content and usability of this site, please send comments via our "contact us" page.

UK Registered Charity No.1146975


  • How the Immune System Works Ever been baffled by the terminology used by medical professionals when they're trying to explain immunity problems?  This booklet produced by the Immune Deficiency Foundation will help!  Our Immune ...
    Posted 12 Mar 2014, 10:56 by Lindsey Stedman
  • Useful Information Regarding Changes to England's SEN system Many thanks to Contact a Family for this helpful information regarding changes to the SEN system for England with effect from September 2014.
    Posted 4 Mar 2014, 02:15 by Lindsey Stedman
  • 2nd Annual General Meeting (AGM) The date of our 2nd AGM has been set for Thursday 27th February via Google Hangout.  Full details of the resolutions and the proxy voting form for voting members can ...
    Posted 4 Feb 2014, 09:45 by Lindsey Stedman
  • Football Teams Support The 22Crew Middlesbrough, Watford and Celtic football clubs have all very generously donated signed team shirts to us.  These are currently being auctioned on eBay to raise much needed funds.  Please take ...
    Posted 26 Nov 2013, 05:56 by Lindsey Stedman
  • 22Crew Contribution to SEN Journal Lindsey Stedman, Chair of Trustees, contributed to an article titled: Supporting children with genetic syndromes in the classroom: the example of 22q deletion syndrome It was published in Support for ...
    Posted 16 Sep 2013, 04:20 by Lindsey Stedman
Showing posts 1 - 5 of 46. View more »