Development and learning delay occurs to a certain extent in virtually all individuals affected by 22q DS. Although learning may be difficult for some, this does not mean that they can't learn specific skills / concepts, just that they may take longer to learn them. Having home educated her 22q DS child for six years, Lindsey Stedman has developed various strategies and techniques which have helped him to largely keep on track with his peers. In this section there is a pack for teachers, parents and carers outlining some common 22q DS learning issues and practical suggestions to address them. There are separate pages giving links to resources and materials which may help your child / young person. Remember that this is a spectrum condition, and interventions which may work for one child / young person may not have the same outcome with another.
Further information for teachers can also be found in the 'Professionals' section of this website.
In this section you will also find information about the statementing process for England, support organisations to help you through it and links to relevant research and papers concerning special needs education. In addition to this, we outline the process should you feel that your child is not receiving the education suitable for their needs.
Contact a Family has been awarded the Department for Education contract to include a Special Educational Needs advisory service within its existing range of services for families. The DOE's SEN page is here, and further Government advice from DirectGov is here.
Click on the links below for the information you require:
Family File a link to downloadable templates, page separator tabs and how to use guide.
Early Support Family Pack consisting of a variety of documents, all downloadable separately so that you can tailor make your pack to suit your needs.
Pre-School and School Age:
A PDF of a Powerpoint presentation titled "Educational Issues for Children with Chromosome 22q11.2 Deletion" by Cheryl Dultz.
22q DS Education Support Pack for teachers, parents and carers - an extremely detailed pack containing information on the numerous learning differences / difficulties for 22q children and young people and practical suggestions on how to help them.
You can download and print sections of this pack for your own use and / or to give to your child's teacher. PDFs are located at the end of each section and in the 'Crew Downloads' section of the website. To download the documents for printing, click on the blue arrow to the right of the document name.
Transition to College and Work:
Job TIPS is a website by Do2Learn providing helpful suggestions on how to get and keep a job. It has been designed for direct use by those with learning differences.