Our Mission

Funding research and providing social, educational and medical support for all those affected by 22q Deletion Syndrome.

Our Objectives 

• Promoting the education (including social and physical training) for public benefit of people in the United Kingdom and elsewhere affected by 22q Deletion Syndrome in such ways as the charity trustees think fit, including by:

o   advancing the education of the public in general, and particularly amongst specialists and professionals, on the subject of 22q Deletion Syndrome and to promote research for the public benefit in all aspects of that subject, including its medical, social and educational aspects, and to publish useful results;

o   providing information and support to maximise educational opportunities for individuals with 22q Deletion Syndrome;

o   establishing and maintaining a comprehensive and informative website resource for the benefit of the public, specialists and professionals;

• Promoting social inclusion among families affected by 22q Deletion Syndrome who are socially excluded from society, or parts of society, as a result of having 22q Deletion Syndrome by:

• acting as a resource for young people and adults living with 22q Deletion Syndrome by providing advice and assistance and organising programmes of physical, educational and other activities as a means of advancing in life by developing their skills, capacities and capabilities to enable them to participate in society as independent, mature and responsible individuals;
• raising public awareness of the issues affecting 22q Deletion Syndrome parents and their children, both generally and in relation to their social exclusion;
• providing workshops, forums, advocacy and general support;

• Conducting or commissioning research on 22q Deletion Syndrome and publishing the results to the public;

• awarding scholarships, maintenance allowances or grants tenable at any university, college or institution of higher or further education.