Chair of trustees and founder
Education is both Lindsey's passion and speciality. She home educated her son for over six years while state education did not work for him then, and has ensured that he has been able to meet or exceed all key age-appropriate learning objectives, ready for his GCSE courses now he has resumed state education. Her expertise learned both during these years, and also in her previous corporate life in human resources and training, has been recognised by her son's local education authority, who have invited her to help redraw policy and best practice for home education delivery. Lindsey is a school governor and is writing a book to help parents support their child's learning at home.
Secretary and founder
Bernard is the father of a child nearing teenage years when The 22Crew was launched. He lives with Lindsey and their son in south-east England. His professional background is information security management for large corporates in the transport, defence, communications, retail and investment banking sectors. Bernard is particularly interested in ensuring that The 22Crew ultimately delivers for both Crew members and those giving and working for it. Bernard has had several year's experience of acting as a charity trustee, has been a school governor.
Sharon, mum to Jordan (22qDS) 14, Hollie 11 and partner to Jon lives in rural Staffordshire. She qualified as a Health and Safety advisor in the energy industry prior to the birth of Jordan. During his early years she was full time carer and mum ensuring Jordan was able to access resources and develop to his full potential. With both children at Primary school Sharon was able to return to work and is now fulfilling her goals as a Quality Environmental Safety and Health Manager in the water industry. In her spare time she has also served as Chair of Governors at a local school and been involved in other charity work.
Bridget lives in Aberystwyth, Mid Wales with her husband Gareth and 2 year-old daughter Elain.
Bridget is a graduate of Aberystwyth University with a degree in International Relations. After working for several years in various administrative roles in both the public and private sectors, Bridget settled as the departmental secretary of Aberystwyth University Sports Centre in 2007. Following Elain's birth in 2010 Bridget took a 2 year period of maternity and subsequently swapped roles at the centre to fit in caring for Elain full time around her part-time work commitments. Having retrained in the last 12 months Bridget is now a qualified fitness and spinning instructor and divides her time at work between instructing, life-guarding and reception. Having raised over £50,000 for various charities in 2011, Bridget hopes to bring some of her fundraising experience to help the Crew sustain their work in helping families affected by the condition.
22q Life Stories and Blogs
Click here to read some inspirational stories of those living with 22q DS